Human beings usually adapt pretty quickly to change. Absorbing it into a new normal - often without noticing it. I'm sure it's a useful survival skill, but when it comes to pacing to manage chronic illness or disability, this ability to normalise a new situation is a complicating factor, and can make managing a condition harder. It means that when something aggravates my symptoms for a few days, I adjust to the higher level of symptoms, making that my 'normal'...

This next few months will probably be the hardest period of pacing I've ever had to do! I've just bought a house with my brother and his family (his wife is one of my best friends since I was a kid). Long term they will live in the main house, and I will have a custom built accessible annex. Short term....we have to rennovate the whole house - everything from floors to heating and electrics, bathroom and kitchen, etc. So to get through it without my health (PoTS and hypermobi

Some practicalities of a new wheelchair - from choosing which tyres you need, to needing to break it in slowly if it's a different set up to previous chairs.